It’s been awhile since I’ve updated my blog, but that’s mostly because I’ve been enjoying life in Florida and staying busy with friends, working hard and trying to keep connected with with my family and a certain sailor who’s been on deployment since January. You’ll be seeing more consistent updates to the blog for the next six months (and hopefully longer) because now I’m involved with a group that has many stories that I want to help tell.
I have been selected as Single Greatest Night honoree by the Cystic Fibrosis Foundation in Jacksonville. Each year, the CFF selects young professionals who are active within the community to be honored at an event in November. As an honoree, I have committed to building awareness about Cystic Fibrosis and fundraising for the Foundation through the summer and fall. I am fortunate enough to have built a community that extends well beyond the geographic region of Jacksonville, Florida so I am going to be using my blog to share information and news about Cystic Fibrosis, my experience as an honoree and tell stories about those who are connected to this disease. My goals are two-fold, mainly to raise awareness and create conversation about Cystic Fibrosis with my friends, family and communities; and also to raise money for CFF so they can continue to provide support to families and fund research for new medicines to treat and cure the disease.
If you don’t know much about cystic fibrosis, you aren’t alone. Here are a few things I’ve learned about it already:
- About 30,000 children & adults in the US (and 70,000 worldwide) have cystic fibrosis
- CF is a inherited chronic disease that causes the body to product thick sticky mucus that clogs the lungs and affects the pancreases, preventing the absorption of nutrients.
- In the 1950’s, when the CFF was established, few children with CFF lived long enough to attend elementary school.
- Today, more than 40% of the CF population is over the age of 18 and the predicted median age of survival is 37 years old.
I ask for your support in my involvement with the Single Greatest Night and CFF. Please bookmark, subscribe or return to my blog periodically to follow along with my journey and the stories we’ll share. If you are able, please consider donating to the Cystic Fibrosis Foundation in my name. You can do this easily online on my personal donation webpage, or you can send me a check if you’d rather. I invite you to contact me anytime if you have questions or want to share your story.
I’m very excited to be a Single Greatest Night honoree and to share my experience with you. I’ll be posting a lot of our kickoff materials and info this week, so make sure you come back to see it.
PS – Happy Father’s Day to all you dads out there. I wrote a post last year to my Dad and Grampa and don’t think I can do any better this year, so here it is again.
Subscribe for the Playbook Template
Are you prepared to go live and shine in the moments that make content great? Add your email below to receive my personal Playbook template that helps to plan out live event coverage in advance.